Consultation with young people and carers on Brisbane North mental health services

The Brisbane North PHN is seeking Expressions of Interest from young people and parents/carers to participate in some focused consultations around their experience accessing child and youth mental health services in Brisbane North region.  They are interested in hearing the experiences of those who have accessed child and youth mental health services themselves, or for someone they care for.

The consultation will take place on
Tuesday 25th September
from
10am to 12noon

$80 Gift cards will be offered to young people and parents/carers who are invited to attend. 

Click here for further information and for the Expression of Interest form (due by Thursday 20th September 2018).

For further explanation on the purpose, key questions, process of review and existing services, click here to download a Background Paper with more detail on those issues. 

National Youth Health Forum inviting 16 to 30 yr old participants

The Consumers Health Forum of Australia is running a
Youth Health Forum on the 18th and 19th of September this year.
The aim is to bring 40 to 60 young people aged 16 – 30 who are interested in advocacy and leadership to Canberra to discuss the health issues that matter to them most and what can be done to improve the system for them.

The Forum will develop recommendations to improve the health system for young people and a delegation of participants will present these at Parliament House following the event. There are also plans to establish an ongoing Youth Health Forum to continue discussions and advocacy after the kick-off event.

Those aged 16 – 30 interested in participating should lodge an expression of interest form by 29 June. These can be obtained via the following contact details:

Phone: 02 6273 5444
Email info@chf.org.au
Text 0411 299 404

(Former advocacy and leadership experience is considered but is not a requirement.)

There is an evening welcome dinner on the 18 September and the forum itself on 19 September. Accommodation and travel will be funded but unfortunately CHF are unable to offer sitting fees.

Click here to check out the flyer where contact details are also listed

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PLEASE SHARE THIS ON SOCIAL MEDIA TO GIVE ALL INTERESTED YOUNG PEOPLE THE CHANCE TO APPLY … THANKS!

COMMUNITY INPUT REQUIRED re: Educational Needs of Young People with chronic/complex health conditions

Young people with chronic health or complex mental health conditions require more than simply healthcare. As they grow and develop – and hopefully receive the most effective treatment for their illness/es – their growth and development in all areas must be considered and supported, as is the case with all young people.

So, as the Health Department and Health Consumers Queensland facilitate the engagement of the wider community in the design and development of the new Adolescent Extended Treatment Facility for young people recovering from complex mental health conditions, Queensland’s Education Department is enthusiastic about embracing the input of those with lived experience in order to meet the educational needs of young people at the AETF AND through all stages of chronic illness and/or severe and complex mental health issues.

So, as part of the Department of Education’s commitment to developing and implementing a statewide continuum of educational delivery to support all students dealing with these kinds of health impacts, there will be a community forum where anyone can attend to put forward opinions, ideas and feedback around how to best support the educational needs of young people recovering from chronic health or complex mental health conditions.

Discussion will include issues relating to the new facility (to be located at The Prince Charles Hospital, Brisbane that is due to open in 2020) which will include residential facilities, day program treatment and therapy, and a school program. But young people move to and from different levels of healthcare service and, across Queensland, health issues and their impacts vary with each young person. So each student has specific needs in regard to accessing and gaining benefit from educational opportunities. So the Department of Education would like to ensure that all those needs are met. And only with the input of those who have needed and will need access to education across different circumstances can the full spectrum of types of education, training and rehabilitation services be planned for and provided.

So anyone who has an interest is invited to the:

Consultation Workshop

on

Monday 30 April, 9.15am–12.00pm

at

Conference Room, Autism Hub & Reading Centre (AHRC)
141 Merton Road (Cnr Park Road), Woolloongabba

(The AHRC is next to Park Road train station and Boggo Road bus station and there if free parking available onsite.)

If you click here or on any links in this post, you’ll be taken to the Eventbrite page where you can register to attend.

The program will be as follows:

9.15am–9.30am: Registration

9.30am–10.00am: Introduction presentation

10.00am–11.30am: Consumer workshop; Carer workshop

11.30am–12.00pm: Light lunch and refreshments

Reimbursement for attendance is provided.
Please advise of any dietary requirements.

Please share this on social media or with anyone you feel might be able to contribute in some way. The more that the people with firsthand knowledge can impart to those developing services, the more likely that Queensland’s young people will receive the invaluable education services that can make a significant difference to their lives.

Thank you.

CALLING ALL YOUNG PEOPLE WITH OPINIONS AND IDEAS!!

A lot of different people have been involved in the co-design process still underway for the new Adolescent Extended Treatment Facility to be built at Chermside in Brisbane. And recently the most important people so far have begun to have input – Education Queensland and Health Consumers Queensland were able to facilitate a workshop that included a number of YOUNG PEOPLE THEMSELVES, all of whom made incredibly valuable contributions that will shape many aspects of the new centre.

So now, the Department of Education would like to hear from more young people on issues like:

  • what classrooms and outdoor learning areas should look like
  • what activities the young people attending the centre should be able to participate in
  • how the centre can have as comfortable and homey environment as it possible
  • what skills and knowledge teachers at the centre should have

IN FACT, ANY IDEAS AT ALL!

So …

IF YOU’RE A HIGH SCHOOL STUDENT / SOMEONE WHO WAS A HIGH SCHOOL STUDENT IN THE LAST 6 YEARS OR SO – OR YOU KNOW SOMEONE WHO FITS THAT DESCRIPTION, please spread the word and encourage young people to

TAKE THE SURVEY

It’s quick, easy and online.

And if young people have had experience (personally or through someone else) with mental health issues, those insights would be especially interesting to learn.
But any young person who has ideas on what might be important in a health and education centre that’s going to have residents and day students attending where the focus is on healing and hope for the future can make a really useful contribution.

The survey is at https://www.surveymonkey.com/r/9WXM99Y
so please use the sharing buttons below to share this post and encourage young people to have their say.

The real experts on what works for young people are young people.
So as many insights as possible from those who know will ensure that the new centre has the best chance of being the place that everyone is hoping it will be.

Needed: Lived Experience reps to guide youth mental health services going forward

PLEASE SHARE THIS AS WIDELY AS YOU CAN …

N.B. Closing Date for Submissions is Thursday, 7 September

ADOLESCENT EXTENDED TREATMENT FACILITY AND EXPANDED YOUTH MENTAL HEALTH PROGRAM

YOU can have direct input into the development of the new facility AND the other vital new services for young people with severe and complex mental health issues in Queensland. 

Health Consumers Queensland are seeking Expressions of Interest for consumer and carer representatives for the following:

Overarching Committee chaired by the Deputy-Director General, Clinical Excellence Division, Department of Health to ensure processes are monitored and advice/direction is provided to support timely and successful delivery of the AETF, StepUp/StepDown Units and new adolescent Day Programs.
Project Oversight Group to oversee delivery of the program of capital works i.e. resolving design and coordination issues and providing advice to the Committee on risks and actions for resolution. (Meetings held monthly.)
Co-design consultation: A range of workshops seeking health consumer input/expertise for detailed design, model of service and integrated educational/vocational services.

Go to this page of the HCQ website for more info and to download the Expression of Interest form to be emailed to Leonie Sanderson by midday Thursday 7 September 2017.

Please phone Leonie on 0437 637 033 if you are interested in applying but are unable to submit by this date.

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WANTED: Young People with Opinions and Experience!

NEWS

Following  the news posted recently about the engagement of two independent organisations to review the alignment and transition arrangements between adolescent and adult mental health services in Queensland, Health Consumers Queensland is hosting a forum run by Health Outcomes International to ensure the most important voices are heard on this issue i.e.

 the views of older adolescents and young people who have lived experience of mental health issues and have had contact with mental health services. 

Young people from 18 to 27 years are encouraged to attend, dial in to videoconference or submit their input to the issues being discussed via email. Through whatever means young people with experience in this area are able to communicate their opinions, it’s important that they are heard. It’s only through knowing what’s been happening that isn’t working that those approaches can be changed and we can put all our efforts into ensuring that the support, processes and services that will actually help are made available. SO … the independent reviewers are doing best to make sure that young people can gather together in a neutral environment – without service providers or government representatives – to air their concerns. This will take place at

Health Consumers Queensland Level 9, 217 George Street BRISBANE QLD 4000

on Thursday 1 June 2017, 1.30 pm – 3.00pm (approximately 1.5 hours)

RSVP: V􀁳anessaH􀀬@hoi.com.au

(If you need to bring a support person, please indicate that in your RSVP and be aware that this forum is to allow free-flowing discussion between young people so all attendees should help to foster that environment.)

FULL DETAILS of the youth forum are on the flyer that can be viewed/downloaded here.

The independent reviewers understand, though, that not everyone will have the capacity to attend. But that doesn’t mean those young people can’t have their say.

 For more information about linking in by videoconference, or to request an interpreter please contact Samantha Battams: 08 83633699 or samantha@hoi.com.au

Young people can also use the Word document available here to download or copy/paste into an email to give feedback on any of the issues to be discussed. They can then send these to either Samantha Battams or to Leonie Sanderson (Health Consumers Queensland) with the assurance that their comments will be included without any identifying information included. Privacy and confidentiality are recognised as vital in this process so HOI have guaranteed that …

 The session will be confidential in that no-one will be individually identified in the review.

 Please share this post with anyone you know who may have valuable experience in this area. The only chance we have to repair/replace the areas of the system that are failing  is if the true experts – those who’ve lived through direct experience of transition from adolescent to adult services – provide their insights. The benefits to other young people in the future will be immeasurable.

AND PLEASE DON’T FORGET … ANYONE with insights into the transition from adolescent to adult services for people with mental health issues in queensland can complete the independently run online surveY HERE.

The more you say, the more things can change.

UPDATE: Mackay event added to Youth Mental Health Forums

NEWS

The Queensland Health Commission of Inquiry Implementation Group and Health Consumers Queensland will be hold a forum in Mackay as well as the other regional centres already announced. The list of dates is now as follows:

2 May (Tuesday)Toowoomba
4 May (Thursday)Sunshine Coast
5 May (Friday)Cairns
9 May (Tuesday) – Ipswich
12 May (Friday)Rockhampton
19 May (Friday)Townsville
23 May (Tuesday)Mt Isa
25 May (Thursday)Bundaberg
29 May (Monday)Logan
30 May (Tuesday)Mackay NEW
1 June (Thursday) Gold Coast
2 June (Friday)Brisbane

Click on your chosen location above to register your attendance OR

Head to the GET INVOLVED! page at severeyouthmentalhealth.org
under the heading getinvolvedtopic4
for more information

OR

Go directly to www.health.qld.gov.au/improvement/youthmentalhealth OR www.hcq.org.au OR
contact EDyouthmentalhealth@health.qld.gov.au 

This is a unique opportunity to genuinely contribute to the specific services and support required for all young people and families in Queensland dealing with severe and complex mental health issues.
We cannot change the past – and we will continue to support those whose suffering continues as a result of what has gone before – but anyone with an interest in this vital area of service provision can now be HEARD and RESPONDED TO.
Please become a part of the movement towards valuing our young people and those who care for them in the way that they truly deserve.

Preliminary Model of Service for New Facility

NEWS

After three workshops where people with lived experience collaborated with clinicians, education staff and government planners, Queensland Health have today released the preliminary Model of Service (MoS) for the new adolescent extended treatment facility in the grounds of Prince Charles Hospital with the following explanation:

The preliminary Model of Service has been released on the COI Implementation team website at http://www.health.qld.gov.au/improvement/youthmentalhealth/model-of-service/ and you are invited to provide comments to inform ongoing development. This opportunity is open until Friday 17 February, 2017.  If you are aware of other people (individuals or organisations) who may be interested in the model of service and contributing comments you are welcome to provide the link to them.

Health Consumers Queensland will continue to work closely with the Department to support the engagement and involvement of consumers and carers in implementation of the Government response to all recommendations. Consumers and carers are encouraged to contact the appointed Engagement Advisor Leonie Sanderson should they wish to contribute to a group response (http://www.hcq.org.au/our-work/barrett-inquiry/).

As well as being available on the government website, the document is also available here.

Note:  A Model of Service doesn’t aim to describe the day-to-day operations of such a facility. It is a high level document which guides the direction taken by a service – defining
WHO the service is for;
WHAT it hopes to ACHIEVE and
WHAT it intends to DO
.
So anyone with an interest in mental healthcare can provide their input at this level to ensure that those who are currently not catered for in government healthcare service provision will finally have an option that will aid their recovery.

Everyone with any interest in Queensland’s health services, mental health issues and adolescent mental healthcare is urged to look through the Model and give feedback.

This can be done in several different ways:

1) By using the survey form that Queensland Health has made available here.

2) By providing a written response via email to the Commission of Inquiry Implementation Team – Preliminary Model of Service at EDyouthmentalhealth@health.qld.gov.au  or

3) By contacting Leonie Sanderson at Health Consumers Queensland to have input into a group response.

The only way to ensure  that the best possible service becomes available to Queenslanders in need of genuinely effective adolescent extended mental healthcare, education and rehabilitation is to have a say about what is needed NOW.

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What does ‘SEVERE & COMPLEX’ ADOLESCENT mental health issues MEAN?

NEWS

Very few people know.

Quite a few people think they know … but they don’t.

So, as is often the case, education is the answer.

If there is genuine understanding of an issue, most people’s needs will be met. So, in endeavouring to ensure that the needs of those affected by severe and complex adolescent mental health issues are met, those advocating for the right services are gathering information from the people who know – the people who’ve experienced those issues.

If this is you or someone you know, we need your input … so that we can make sure YOU and those close to you … AND others like you … get the best help in future.

We need to put together stories, snapshots, insights into what it’s like living with severe and complex mental health issues during adolescence – for the young people, for their carers, for their families and their friends. 

So if you can tell us just a little, we can put together some examples that resonate with truth but without identifying any individual or contravening anyone’s privacy. We can paint a clear picture of what it feels like to:

  • be turned away from an Emergency Department
  • be denied access to services because you’re TOO unwell
  • have to retell your history over and over again to psychiatrists, psychologists, CYMHS staff
  • etc.

AND what it feels like to:

  • get the right support so that you can attend school
  • work with a clinician who respects your input and acknowledges your strengths
  • build a life with functional relationships and moments of peace
  • etc.

Only your own stories can describe what it’s like. And we know that it’s not easy to tell those stories. So Health Consumers Qld have put together some questions to provide a framework for people to provide their insights. So that we can educate people – the people in positions that will determine the services available to support those dealing with severe and complex adolescent mental health issues.

Click on the links below to have your say – the good, the bad, the unimaginable. If the government officials, medical professionals and bureaucrats don’t know what’s happening to you, they can’t improve the system, the type/amount of support or the approach/attitude of clinical staff etc.

The good things must be replicated and shared.
The bad things must be prevented from impacting people’s lives ever again.

So please fill us in about your significant experiences and knowledge of what works/doesn’t work (AND/OR encourage others to do so) via:

Snapshot for consumers/young people

and

Snapshot for family/carers

and you can provide a brief history with this story template.

Then we’ll be able to educate people about what you’re dealing with (while you remain anonymous). And we can push even harder for better services so that, in the future, you’ll have only good stories to tell.

Progress in Youth Mental Health Planning

NEWS

Queensland Health now have a website that deals specifically with their actions in relation to the Barrett Adolescent Centre Closure Commission of Inquiry. This will provide information on plans for the new extended treatment and education facility as well as other related developments and, along with this site and the dedicated page at Health Consumers Queensland, it’ll inform people of ways they can become involved in plans for future services and policies. Regular Communiqués will be posted on this page along with any other news and relevant information. Continue reading