Lived Experience Needed for Co-design of Youth Mental Health Programs

As planning continues for the Adolescent Extended Treatment Facility (AETF), other programs to support young people with mental health issues must also be developed.

TWO NEW ‘STEP UP STEP DOWN’ UNITS in North and South Brisbane
and
Refurbishment for the TWO NEW ADOLESCENT DAY PROGRAM SPACES at Logan and the Gold Coast

are priorities for the Mental Health, Alcohol and Other Drugs Branch (MHAODB) of the Queensland Health Department.

With the positive engagement of consumers and carers with lived experience in the AETF design thus far, establishing co-design consultation for these two services means that there are a range of opportunities for involvement of people with lived experience with youth mental health issues.

If you are interested in participating in the infrastructure co-design that will assist and inform design development of these facilities – or you know someone who might be – click here to download the Expression of Interest (EOI) form to be completed and submitted to Leonie Sanderson at Health Consumers Queensland by noon on the 2nd of April 2018.
(If you are unable to submit by this date but are still interested in applying, please phone Leonie on 0437 637 033.)

Different aspects of involvement require different time commitments so it’s possible to find a way of contributing that will suit your regular obligations. Participants are assisted with transport and/or access to meetings and financial reimbursement for their time. It’s hoped that individuals from rural and regional areas and a range of cultural background will be able to contribute in order to meet the needs of every young person who will need effective services in the future.

This is a great opportunity to ensure that the young people of Queensland get the full support that they need to deal with mental health issues. While a new extended treatment facility is vital, no youth mental health service will be effective unless the full system of treatment, education and rehabilitation options surrounds it. Young people must be able to transition from and to different levels and types of support in order to continue to heal and consolidate the progress they have already made. So if you have some experience with youth mental health issues, you have valuable insights into what kinds of services are essential and how they should be delivered to ensure they are most accessible and effective.

Please share this post wherever you can to facilitate the involvement of Queensland’s most valuable contributors – the people who use and need the healthcare that the government provides.

Thank you.

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Support/Resources for Youth Issues with Alcohol and Other Drugs

Thanks to the Alcohol and other Drugs Team at Qld Health’s MHAODB (Mental Health Alcohol and Other Drugs Branch), we’ve now be able to add some useful online and phone-based resources for young people and their families encountering issues with alcohol and other drugs to the severeyouthmentalhealth site.

There are several options available – some focussed on young people, others on classroom education and there’s support too for carers who find themselves in situations where they need to learn more or discover ways to assist young people in finding the help that’s right for them.

Depending on people’s circumstances, some of these online resources might lead to other forms of support or treatment while others might help those who have already completed a program or treatment by providing some self-management tools that are easily accessible. As with so many aspects of healthcare, there is no ‘one size fits all’ approach. But with our focus being online for so much of our lives, a range of options that have accurate information and proven helpful strategies at our fingertips may be a useful starting point.

Links to these newly added Alcohol and Other Drugs resources are now – along with all the links to youth mental health resources – on our USEFUL LINKS page. So if you know someone who might benefit, feel free to send them to:

https://severeyouthmentalhealth.org/useful-links/

or

https://wp.me/P7lCk2-P

AND do let us know if you have discovered or know of any other online resources that might be of use to include on that page. New sites and new understandings about treatment and support are developing all the time so we want to make sure that people have access to the things that work for them!

THANKS!

NATIONAL Developments in Mental Health Services

MENTAL HEALTH AND SUICIDE PREVENTION MONITORING AND REPORTING FRAMEWORK

The National Mental Health Commission is developing a long-term monitoring and reporting framework to bring a national perspective to mental health and suicide prevention through the lens of consumers and carers and their experiences. This will enable the Commission to deliver an independent, consistent and comprehensive account of reform progress and support the Commission’s new role to monitor and report the implementation of the Fifth National Mental Health and Suicide Prevention Plan (see next item for more on the Plan).

CONSULTATION

The national consultation process on the draft Framework (being conducted from 16 October to 13 November 2017 and involving workshops in capital cities across Australia) will engage a broad cross-section of stakeholders in government, primary health networks, mental health peak bodies and service providers and professional bodies with consumers and carers seen as key representatives with invaluable input to provide.
SO YOU CAN BE DIRECTLY INVOLVED!
Attendees of the workshops will receive a copy of the draft Framework at least one week in advance and an on-line portal for submissions will also be conducted during this timeframe.

The aim is for the Commission to receive targeted feedback on the draft Framework’s priorities, potential gaps, and the availability of data to support the monitoring and reporting of mental health and suicide prevention in Australia.

This consultation NEEDS the voices of those with LIVED EXPERIENCE.

 

The Brisbane workshop is from 9.30am – 2.00pm on Monday 30 October and Hotel Jen on Roma Street, Brisbane and attendance is FREE. If you’d like to register to attend, you can go directly to the booking page at this link or for more information about this or other workshop locations, contact vanessa.d’souza@mentalhealthcommission.gov.au or via www.mentalhealthcommission.gov.au

Online Consultation Survey

For those who can’t attend the workshop, you can provide your input via the online survey here. Or if you’d like to enquire about other ways to contribute, Nous Group (who are working with the Commission to develop the national Framework) can be contacted on nhmc.mrf@nousgroup.com.au.

 

RELEASE OF FIFTH NATIONAL MENTAL HEALTH AND SUICIDE PREVENTION PLAN

With seemingly little publicity, Australia’s Fifth National Mental Health and Suicide Prevention Plan was released on 14 October. The press release*  indicates that:

A particular focus of the Plan is addressing eating disorders. These can have a catastrophic impact on both individuals and their families. It will be a personal priority as we frame further policy in the future. The Plan includes eight nationally agreed priority areas and 32 coordinated actions for the next five years with a view to achieving an integrated mental health system. A key priority area is strengthening regional integration of mental health services to support more effective treatments for those in need.

[* The press release also mentions HEAD TO HEALTH, the federal government’s digital mental health resources site. It’s a very user-friendly interface where consumers and carers can access a range of service providers, support for specific mental health issues etc. so you might want to check it out.]

So, as stated above, since the role of the NMHC is to monitor and report the implementation of the plan, those ‘on the ground’ are in a key position to provide input on if those tasks are being carried out effectively. So ongoing/intermittment contact with the activities of the NMHC will be valuable.  On the home page of the National Mental Health Commission, there’s a ‘Get Involved’ box where you can sign up to receive eNews updates so that could be a useful way to stay informed.

OR …

BECOME A QUEENSLAND REP FOR THE NATIONAL MENTAL HEALTH CONSUMER AND CARER FORUM

The NMHCCF provides a mechanism for mental health consumers and carers to foster partnerships and to ensure input of consumers and carers into the activities of the mental health sector, including policy, service delivery and evaluation of reform in Australia. And the Queensland Mental Health Commission is overseeing the recruitment of:

  • a Queensland CONSUMER representative and
  • a Queensland CARER representative

General information on these roles – which are remunerated – can be found here and the Operating Guidelines for the NMHCCF (including Terms of Reference for the rep roles) are here. The closing date for Expressions of Interest in the roles is 17 November.

*

One thing that must be said after all these opportunities for involvement are listed is that WE KNOW that those directly affected by severe and complex youth mental health issues are rarely in a position to be able to attend workshops, regular meetings or commit to an engagement role on an ongoing basis. So we will always try and find ways that you, within the context of your lives, can provide feedback – whether it be via online surveys, direct contact (phone/email) with those managing a consultation process OR by utilising the amazingly dedicated services of Health Consumers Queensland as a conduit. Leonie Sanderson’s role is to represent the needs of those affected in this area so you can get in touch with her for her advice on how your own experiences and ideas can be communicated to those who can utilise those to change service provision and attitudes. We can’t avoid working with bureaucracies, large business-like entities and others in official capacities who don’t always have a true understanding of the daily lives of people in the cohort for which they’re planning. These people are the ones who can make the services what they need to beSo we’ll always be endeavouring to find ways that those who LIVE severe adolescent mental issues can pass on their vital insights to those who provide the services available to support the people whose needs are so great.


 

Needed: Lived Experience reps to guide youth mental health services going forward

PLEASE SHARE THIS AS WIDELY AS YOU CAN …

N.B. Closing Date for Submissions is Thursday, 7 September

ADOLESCENT EXTENDED TREATMENT FACILITY AND EXPANDED YOUTH MENTAL HEALTH PROGRAM

YOU can have direct input into the development of the new facility AND the other vital new services for young people with severe and complex mental health issues in Queensland. 

Health Consumers Queensland are seeking Expressions of Interest for consumer and carer representatives for the following:

Overarching Committee chaired by the Deputy-Director General, Clinical Excellence Division, Department of Health to ensure processes are monitored and advice/direction is provided to support timely and successful delivery of the AETF, StepUp/StepDown Units and new adolescent Day Programs.
Project Oversight Group to oversee delivery of the program of capital works i.e. resolving design and coordination issues and providing advice to the Committee on risks and actions for resolution. (Meetings held monthly.)
Co-design consultation: A range of workshops seeking health consumer input/expertise for detailed design, model of service and integrated educational/vocational services.

Go to this page of the HCQ website for more info and to download the Expression of Interest form to be emailed to Leonie Sanderson by midday Thursday 7 September 2017.

Please phone Leonie on 0437 637 033 if you are interested in applying but are unable to submit by this date.

*

Just the beginning …

The response to the Barrett Commission of Inquiry has reached an important stage. The MHAOD (Mental Health, Alcohol and Other Drugs) Branch of Queensland Health is finalising the work required of it in relation to the recommendations that came from Justice Wilson’s report. The majority of the actions committed to by the current government in its Inquiry response involved analysis or exploratory activities that would lay the foundation for the development of practical changes in approach to future service provision i.e. in order to “improve service agreements …; evaluations…; transitions…; and coordination between services”, the current status of all of these things must be assessed/mapped. And, as a result of the research, appraisal and consultation, recommendations for future actions have now been put to the government for their decisions on whether/how things might progress. A summary of – and links to – the reports can be found on the August update on the Developments page of this site.

Of course it’s hoped by all those who have put so much time and effort into achieving what has been accomplished over the past year that this – or any future government – will continue what has been a productive beginning. Particularly because all contributors know that Queensland’s young people with severe and complex mental health issues and their families – and those who will exist in the future – have the most at stake.

It’s important to bear in mind that most bureaucratic processes can take extended periods of time and that what has been achieved so far has been done within a timeframe that would overpower many teams of public servants. But those involved have been able to accomplish a considerable amount. And, as a result of this process,  a dedicated Child and Youth Mental Health Team has been established within the MHAODB of Queensland Health, ensuring system leadership for child and youth mental health policy and planning. This can only lead to positive developments for children and young people and their families whose unique needs deserve specific representation at this level so it’s a very valuable step.

As well as acknowledging the focussed staff within Queensland Health, deep appreciation must be expressed to the amazingly passionate consumer and carer representatives whose contributions have significantly shaped the outcomes to date. Those in the position to provide invaluable perspectives are often also those for whom making the time and energy for meetings, forums etc. can be a considerable challenge. So anyone facing personal hurdles who overcame those to contribute in any way deserves our sincere gratitude and admiration. Thanks to the seamless and enthusiastic facilitation of Health Consumers Queensland, we know that the recommendations that are being put to government have been genuinely and appropriately influenced by those with lived experience. Both Qld Health Deputy Director General Dr John Wakefield and the Managing Director of the consulting firm undertaking the design of the new extended treatment facility have clearly stated that, without the input of those who have lived with the reality of severe and complex adolescent mental health issues, what is being presented to the government would have been quite different.

We now await the policy decisions of this or the next government (depending on when the next state election takes place) to find out if/how this strong foundation might grow into life changing approaches to mental healthcare.

Because, with generations of young Queenslanders still at risk, this is clearly only the beginning. And continued commitment to improving the services for some of the most vulnerable across our communities is not only logical and financially sound … it is the obligation of those with the ultimate authority to provide an adequate system of resources for the people of the state.

As we note this promising start , however, we can never allow ourselves to forget those who have been lost and those who have experienced such loss and irreparable damage.
They are always in our thoughts.
They drive us to do better.
And, for them, we will always do what we can to create a more understanding and healing world for those that are to come.

*

Progress Report – June 2017

A summary on the progress of the implementation of the recommendations to improve mental health services for those affected by severe and complex adolescent mental health issues in Queensland is now on the DEVELOPMENTS page at severeyouthmentalhealth.org. This includes links to more detail via the Queensland Health Communiqués released following each Steering Committee meeting as well as  other recently tabled reports.

A couple of documents that are likely to be of particular interest are those relating to RECOMMENDATION #4 – THE DEVELOPMENT OF A NEW ADOLESCENT EXTENDED TREATMENT FACILITY (AETF). The Thematic Analysis Report summarises the web feedback provided on the draft Model of Service for the AETF so whether or not you were in a position to complete the online survey, the feedback from that makes for interesting reading. In addition, there is an External Review of the Model of Service by Dr Paul Robertson, a Victorian based child and adolescent psychiatrist of 25 years experience, who undertook consultations with a number of groups and individuals as well as being given access to relevant documentation. His insights will undoubtedly also play in a role in the development of not only the new facility but will encourage a strong focus on the full continuum of care for young people with mental health issues in Queensland (the child and youth mental health services continuum ie. CYMHSC, as Dr Robertson refers to it) and the ongoing co-design process i.e. “A structure to support ongoing consumer and carer participation in the broader CYMHSC system is recommended“.

So a complete and integrated CYMHSC system that will allow access across the state for all young people with mental health issues to a full range of treatment and other service options will be a key issue in the future. This will not only ensure stable and informed transitions from one care/education/support service to another but will hopefully mean that some young people who might otherwise have needed extended inpatient care could achieve recovery without that. For, although the clinical experts who gave evidence at the Barrett Inquiry made clear that there will always be a group of young people whose conditions and individual circumstances are so severe and complex that community-based care will not adequately support their progress, the objective is always to facilitate recovery in the least restrictive environment possible. Queensland needs a statewide service like the AETF but it also needs a complete system within which collaboration and communication are the foundation of operations. Mental health issues impact all aspects of people’s lives and when the individual needs and situations of those suffering are acknowledged, understood and met as effectively and immediately as possible, all our communities will benefit. So Dr Robertson’s urging that collaborative planning does not begin and end with a new facility is extremely pertinent.

He also stresses the need for RESEARCH to be a key component of the new AETF i.e.

Reference is made to the AETF undertaking research. It should be obliged to collect sufficient data to allow appropriate review of its functioning. Adequate resources, funding and time should be allocated for this to occur. Research will not occur without appropriate funding and partnerships with universities or other research organisations. Both appropriate data collection and analysis and research would require an active and resourced plan.

Existing and developing technologies should ensure that research extends beyond the new facility and across all the components of the CYMHSC. Collecting data on the services that precede and follow a young AETF patient’s inpatient treatment – will provide insights into this cohort of young people that is currently lacking across the globe. AND compiling extensive evidence on all youth mental health issues must be seen as a priority in a country where available data states that one in four young Australians currently has a mental health condition [ABS National Survey of Mental Health and Wellbeing: Summary of Results 2007 (2008), p 9] and we are regularly made aware that the risk in our youth population only continues to grow. So methods of gathering and collating information on the challenges faced by our young people that not only avoid any negative impact on the vulnerable but may, in fact, have potential for therapeutic benefit require prioritised consideration.

The STATEWIDE FORUMS facilitated by the Health and Education Departments along with Health Consumers Queensland have now concluded and summary information from those should soon become available. Consumers and carer representatives attended these with the support of HCQ and, with a number of factors influencing the ability of local consumers and carers to attend, it has also been invaluable to have Leonie Sanderson, the dedicated HCQ Engagement Advisor, continually open to accepting input via a range of communication avenues (surveys, emails, teleconferences and meetings for specific subgroups) to ensure that anyone in Queensland with insights into service provision in this area have had – and will continue to have – their voices heard.

THE ROLE OF HEALTH CONSUMERS QUEENSLAND has been extremely important in the process so far – supporting and facilitating the active involvement of consumers and carers. And HCQ’s enthusiasm for the project was highlighted when they made it the theme of the Plenary Session at their annual forum (video and written info on that session is available here), with Katherine Moodie and Jeannine Kimber – two of the consumer/carer representatives on the Steering Committee – on the panel alongside John Allan, Executive Director, MHAODB, Queensland Health; Gunther De Graeve, the Managing Director of the consulting firm undertaking the design of the new AETF; and Stacie Hansel, Executive Director, Dept Education & Training. The discussion highlighted the great potential of this project to not only produce innovative and more effective outcomes but to influence the way that future service planning should proceed. Participants significantly endorsed the tangible value of consumer/carer input as Gunther De Graeve stated:

There has been an enormous change in our design development, actually, through this process. … This co-design process really allowed us to reach very deep into the operational requirements, into the therapeutic requirements, the day-to-day requirements and then safety overlays etc. of this facility and it gave us a very wide platform. Traditionally, this engagement goes to clinicians and nursing staff and therapeutic staff and very little with the consumers. … It was a genuine process of actually trying to understand what the needs were and, to date, I still say that if we didn’t do that process we would have designed a very different facility and it probably wouldn’t have been – definitely not – as therapeutic as that facility could be for the patients.

So, as progress goes, it would seem that in many ways we are at the beginning of something bigger than a response to the Inquiry recommendations. Although the planning for the new AETF is well underway and the examination of transition procedures, service agreements and other vital elements that underlay the provision of services has been undertaken, the potential of this project to have an effect on other aspects of service delivery (education, vocational training, support for carers and families, justice and legal issues, housing and accommodation etc.), of approaches and attitudes to mental health and to ALL those affected by these issues must make this project only the start. People with lived experience must have a permanent seat at the table – not just on listening tours and wider consultation but at levels of decision-making and influence. And that includes not only consumers of services and their carers and families but those professionals who have dedicated years of clinical, educational and other practice to these consumers and carers. Those who work daily to improve the lives of others by being part of the reality, by knowing the individuals and supporting them in their journey must always be encouraged to give insights on the practicalities, the impediments, the successes.

Only through true collaboration will success be achieved. And if there is any area in which we must achieve, it is in keeping our young people alive and giving them hope for a better life.

$70 million in Queensland budget for Adolescent Mental Health

NEWS

The opening story on the 12 June bulletin on Queensland’s ABC television News was that the Palaszcsuk’s 13 June 2017 state budget – released this week – includes just under $70 million dollars to not only proceed with the establishment of the new extended treatment and rehabilitation facility at Chermside but to create four other complementary services aiming to support young people with mental illness in the community. (Online summary of ABC report here.)

Future plans include two new Step up Step Down facilities in south-east Queensland and two day programs to be based at Logan and the Gold Coast.

Justine Wilkinson, who lost her daughter Caitlin following the closure of the Barrett Adolescent Centre, has welcomed the allocation of funding but acknowledges that there is still much to be done to provide young people and their families with the full range of support that will make a significant difference to lives that can be indescribably turbulent and challenging. Ms Wilkinson’s ongoing advocacy has meant that she – along with other consumers and carers with lived experience in this area – has played a significant role in the ongoing co-design of new services following the government’s commitment to act on all the recommendations from the BAC Commission of Inquiry.

The engagement of Health Consumers Queensland has ensured that consumer and carer representatives sit on all committees and working groups undertaking planning to fulfil the recommendations and that people throughout Queensland have had opportunities to provide meaningful input into future service provision. This commitment to co-design ensures that those with lived experience not only are heard but heeded and can actively help to shape future services – a collaboration that should lead to programs and support that genuinely meet the needs of those in the community that require them.

Health Minister Cameron Dick believes the funding package to be a landmark step for young people so the community affected by youth mental health issues can only hope that innovative approaches to planning and needed funding continue to be at the forefront of the minds of all those responsible for providing vital services at all levels and in all sectors.

(More comment on this announcement can be found at the Blog post: ‘A Budget Boost –its implications for the Future and the Past.)

A Budget Boost – its implications for the Future … and the Past

A BLOG POST

The announcement of just under $70 million dollars to not only proceed with the establishment of the new extended treatment and rehabilitation facility at Chermside but to provide two new Step Up Step Down facilities and two new Day Programs to support young people with mental illness (online summary at the ABC website here) demonstrates the current government’s ongoing commitment to those who have been sadly overlooked in the past. Bi-partisan support for these positive moves would begin to ensure some long-needed stability and security for the futures of those in this most vulnerable of groups.

An adolescent extended treatment facility (AETF) fills a dangerous gap in service provision and Step Up Step Down and Day programs are vital in the full continuum of treatment and support options that are required to meet the needs of all young people with mental health issues. Extended inpatient treatment has proven essential for those young Queenslanders with severe and complex issues who have failed to make progress accessing community-based care and outpatient/intermediate care service options. The additional new programs will – if they are accessed in a timely way – provide some young people with the help needed to circumvent a stay in a residential facility. AND for those for whom extended inpatient care is essential, they will ensure that transition from one environment to another is gradual and fully supported according to the individual needs of the young person. Those affected by youth mental health issues across Queensland will be hoping that these kinds of service options will become readily available across the state. As community-based care remains the optimal environment – when the circumstances are right – then all communities must have access to every level of treatment and support.

The plans for the new facilities and programs have come from the process that commenced following the government’s commitment to act on all the recommendations from Justice Margaret Wilson’s report following the BAC Commission of Inquiry. Queensland Health then undertook to utilise a “co-design” process i.e. where bureaucrats, clinicians, specialist architects and other professionals work alongside consumers and carers to plan services that will be most effective. (Acknowledging that expertise lies not only in professional knowledge and practice but in lived experience is currently seen as innovative but should inevitably become standard procedure. Omitting those with practical, pertinent and comprehensive knowledge of the lived experience can only add an important dimension to planning for services in any area.)

Those young people (current and former) and family members who have taken part – and continue to be dedicated to – the process of genuine collaboration have demonstrated a level of commitment that is rare. People whose lives are affected by severe and complex mental health issues find themselves most often in situations where days and nights are to be survived moment by moment; plans are seldom made and often abandoned; and significant trauma, suffering, isolation and emergency management of the effects of illness must be regularly dealt with. And during recovery, the right approach for so many will be to look forward, to put strategies in place to navigate through daily challenges and to resist rumination on issues of anxiety and trauma. So participation in design of future services may be something that could be extremely problematic for the stability of some people’s mental health. There is great understanding throughout the mental health community for all who have suffered to make the right choices that will best support healing and not put mental health at risk and equally, there is deep gratitude for those able to put time and effort into a co-design process, sometimes at personal emotional risk.

And then there are those for whom looking forward provides a view with a void that can’t be filled – the families and communities who have lost loved ones will be experiencing mixed emotions at this announcement. The families of Talieha Nebauer, Will Fowell and Caitlin Wilkinson Whiticker will no doubt be relieved that there continue to be moves to ensure others might not have to suffer the personal tragedies that still shape their lives. Justine Wilkinson, herself a key participant in the co-design process, has told the ABC in relation to the budget commitment (particularly in relation to the continuation of planning for the Chermside AETF):

That’s absolutely fabulous, but this change has to continue, this is just the beginning and it has to be just the beginning. … We need to keep feeding these changes and innovations down the system to pick up young people before they get to that point.

However, we must recognise this news can only be bittersweet for those whose young people did not have the benefit of a government with such a strong commitment to confront youth mental health issues and to listen to those affected to order to provide the needed services. So our thoughts must also be with those whose bereavement continues as we hear this news. We must assure them that we will never fail to remember those who will not have the opportunity to access planned new services and we will continue to support those families for whom an inquest may provide some answers but will inevitably be a traumatic process and will never ever restore what they have lost. Talieha, Will and Caitlin and those that will continue to feel their absence from their lives are always in our thoughts.

The complexity of severe adolescent mental health issues is reflected in the reactions of those with lived experience to this positive budgetary news. There is relief, hope and gratitude but there is also caution and uncertainty from those who have experienced innumerable disappointments and who know that politics can play an inappropriate role in what is necessary in service provision across our communities. And there is renewed reflection on the tragic losses that will continue to impact people’s lives, whatever the future holds.

Severity and complexity in relation to mental health issues is not confined to a small group of young people. It is pervasive. It is challenging. And so it has become a situation that a significant proportion of the population have to live with and an issue that every single one of us must acknowledge.

The support that has been provided to the former Barrett families throughout the community has demonstrated that the capacity to care is our greatest strength. It is the strongest choice that any human being can make and it is undoubtedly the most rewarding. So with, gratitude for all everyone has done to lead us to a day when $70 million is committed to the next generation of Queenslanders, it’s hoped that the future contains not just all the services required but the ongoing support of an impressively caring population.

WANTED: Young People with Opinions and Experience!

NEWS

Following  the news posted recently about the engagement of two independent organisations to review the alignment and transition arrangements between adolescent and adult mental health services in Queensland, Health Consumers Queensland is hosting a forum run by Health Outcomes International to ensure the most important voices are heard on this issue i.e.

 the views of older adolescents and young people who have lived experience of mental health issues and have had contact with mental health services. 

Young people from 18 to 27 years are encouraged to attend, dial in to videoconference or submit their input to the issues being discussed via email. Through whatever means young people with experience in this area are able to communicate their opinions, it’s important that they are heard. It’s only through knowing what’s been happening that isn’t working that those approaches can be changed and we can put all our efforts into ensuring that the support, processes and services that will actually help are made available. SO … the independent reviewers are doing best to make sure that young people can gather together in a neutral environment – without service providers or government representatives – to air their concerns. This will take place at

Health Consumers Queensland Level 9, 217 George Street BRISBANE QLD 4000

on Thursday 1 June 2017, 1.30 pm – 3.00pm (approximately 1.5 hours)

RSVP: V􀁳anessaH􀀬@hoi.com.au

(If you need to bring a support person, please indicate that in your RSVP and be aware that this forum is to allow free-flowing discussion between young people so all attendees should help to foster that environment.)

FULL DETAILS of the youth forum are on the flyer that can be viewed/downloaded here.

The independent reviewers understand, though, that not everyone will have the capacity to attend. But that doesn’t mean those young people can’t have their say.

 For more information about linking in by videoconference, or to request an interpreter please contact Samantha Battams: 08 83633699 or samantha@hoi.com.au

Young people can also use the Word document available here to download or copy/paste into an email to give feedback on any of the issues to be discussed. They can then send these to either Samantha Battams or to Leonie Sanderson (Health Consumers Queensland) with the assurance that their comments will be included without any identifying information included. Privacy and confidentiality are recognised as vital in this process so HOI have guaranteed that …

 The session will be confidential in that no-one will be individually identified in the review.

 Please share this post with anyone you know who may have valuable experience in this area. The only chance we have to repair/replace the areas of the system that are failing  is if the true experts – those who’ve lived through direct experience of transition from adolescent to adult services – provide their insights. The benefits to other young people in the future will be immeasurable.

AND PLEASE DON’T FORGET … ANYONE with insights into the transition from adolescent to adult services for people with mental health issues in queensland can complete the independently run online surveY HERE.

The more you say, the more things can change.

Have your say ~ Transitions between Adolescent and Adult Mental Health Services

NEWS

The Inquiry into the closure of the Barrett Adolescent Centre brought many issues to light in relation to mental health services for young people that need to be addressed.

In chronological and legal terms, an adolescent becomes an adult at 18 years old. But when that adolescent has been enduring severe and complex mental health issues for years, adult services are too often totally inappropriate for his/her needs and transition to those purely because they’ve passed their 18th birthday can frequently be more harmful than helpful. The process of transition (when a young adult does actually reach a stage where they have the reasoning capacities, lifeskills and emotional/social development of an adult – ensuring access to adult services will facilitate ongoing progress) is also obviously vital. Trauma is likely to have already been a significant experience in the lives of these young people and all efforts to support them must ensure that no therapeutic process or mechanism between processes contributes to that in any way. Individual readiness and gradual and appropriate transitions must not be an aspiration but a BASIC REQUIREMENT of their mental healthcare.

Justice Wilson’s Recommendations from the BACCOI included:
REC 5: Improve transitions for adolescents moving into adult mental health services
and the government’s action on this has been to assemble a working group to outline the terms of reference for the engagement of an organisation to undertake an independent review of the current situation as regards the alignment and transition arrangements between Queensland’s adolescent and adult services.

Health Outcomes International (HOI) and Synergy Nursing and Midwifery Research Institute are, as a result of their appointment, undertaking a range of consultations – from focus groups, discussions with key stakeholders and an online survey to gather information on issues including the following:

  • Mental Health Program/Services that currently exist throughout Queensland
  • Capacity/ resourcing issues
  • Processes for the transition of adolescents and young people to the adult mental health system
  • Collaborative working arrangements and communication between services
  • Service Innovations
Many young Queenslanders and their families will have valuable information based on their own experiences and it is only through sharing those experiences that access to the appropriate services and transition methods can be developed. The problems Queenslanders have personally experienced or witnessed cannot continue but any shortcomings or mismanagement can’t be addressed if they are not communicated to the independent reviewers. Please be assured that any contributor’s personal identity WILL BE PROTECTED.

CONFIDENTIALITY
HOI states clearly that the information collected by the survey is for statistical purposes only and won’t be used to identify survey respondents, mental health service users or their families/carers. If you have any questions or concerns, you can contact Andrew McAlindon, Senior Manager at HOI (AndrewM@hoi.com.au)
and/orLeonie Sanderson
please note that Leonie Sanderson at Health Consumers
Queensland is an ADVOCATE and ADVISOR for the needs of CONSUMERS and CARERS, specifically in relation to the government response to the Inquiry’s recommendations.

As the HCQ website states:

Health Consumers Queensland is a not-for-profit organisation and a registered health promotion charity and we believe in improving health outcomes for people in Queensland. One way we do this is through enabling consumers to be an effective voice in how health services are designed and delivered.

So you can contact Leonie at leonie.sanderson@hcq.org.au to clarify anything or provide anonymous information should you have any concerns about sharing information related to your mental health service experiences in a more public forum.

Those who were/are unable to attend the ongoing regional forums* should be encouraged to contact Leonie with their insights at the above email address or by phoning HCQ on 07 3012 9090 to arrange the best method and time of sharing your insights to suit your needs and availablity.

So please, urge those you know who have experience in the transition of a young person/s from adolescent to adult mental health services to undertake the survey (at http://www.surveygizmo.com/s3/3542411/Queensland-Health-Public-Mental-Health-Services-Mapping) and/or contact Health Consumers Queensland directly if you have additional insights to share regarding the services needed to address the needs of young people with severe and complex mental health issues. Contributions from those with experience are essential in ensuring that the right approaches, programs and attitudes to mental healthcare for our most vulnerable young people become standard practice as soon as possible.
* There are still places available for the following Youth Mental Health forums:
Townsville: 9.30am - 12.30pm, 19 May - Riverway Function Space, Tony Ireland Stadium.
Mt Isa: 12.30 - 3.30pm, 23 May - MICRRH, James Cook University Mount Isa Centre for Rural and Remote Health, Mount Isa Hospital, Joan St, Mount Isa City.
Logan: 9.30am - 12.30pm, 29 May - Logan Central, 51 Wembley Rd, Ground floor conference room Addiction, Mental Health Services.
Mackay: 10.30am - 1.30pm, 30 May - Ocean International Resort, 1 Bridge Rd, South Mackay.
Bundaberg: 10.30am - 1.30pm, 31 May - Burnett Riverside Motel, 7 Quay Street, Bundaberg.